Medical conditions--St. Mungo's Support Group, Fibro, Coeliac, Chron's, Psoriasis, Insomnia, etc. |
 May 10 2006, 12:41 PM
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Cauldron Bottom Measurer  Posts: 128 Joined: 4:04pm July 8, 2005 Location: Carnegie Hall...eventually.  |
I was posting a reply in MonieLou's "Ouch Moments" thread, and anyone who has Fibromyalgia/Chronic Fatigue Syndrome knows that (usually physically) traumatic events are believed to be a major trigger for Fibromyalgia, which is a chronic pain disorder. So it got me thinking...I'm just curious as to whether or not anyone else in the forum has to deal with these chronic pain conditions on a day-to-day basis, whether it's you yourself, a family member, friend, work associate, whatever.
I've been slightly meloncholy the last few days because my Fibromyalgia has been affecting my life more and more recently, and it's frustrating, to say the least. I'm having my 26th birthday tomorrow, and yeah, I usually get like this right around my birthday because every year I'm reminded of how young I still am, and at the same time, how much there is that I can't do because of my physical condition. I was diagnosed at age 15, after 5 years of unexplained aches and pains. I can remember I used to get pain radiating from my lower back down through my hips and legs so badly that I couldn't walk. I would just lie with my head in my mom's lap and sob for hours until I fell asleep. That was when it first started. After I got the diagnosis, it was almost a relief. I was able to do some physical therapy at first, and every now and then I would get injections of Cortizone at key points throughout my body...shoulders, knees, etc., but I also had periods where the symptoms would almost totally go away. Guess that's why they call it a "syndrome," but they're not going away now...in fact, the last few years have been really bad. I even had to take off 2 years at school because I just couldn't keep up physically. It wasn't just the pain, it was the exhaustion, too. Tomorrow, I'll be 26 years old...still trying to finish school, but even when I finish...I'm a Music Education major...I'm genuinely afraid of what will happen if/when I get a teaching position. If I can't keep up with a class schedule now, how can I expect it to be any better when I have to teach? How am I going to keep up with all those kids? I have days where I literally can't get out of bed without help. This morning was one of those, as a matter of fact, and I guess it just really freaked me out. They tell you that Fibromyalgia/CFS is not progressive, but mine is definitely getting worse, and frankly, I'm kind of scared. I'm sorry to whine, guys, really. I'm just having a really bad "Pain Day," as I call them, and like I said, it's my birthday tomorrow, so every year around my birthday, especially if I'm feeling really bad, I just get...worried, I guess. I'm just wondering if any of you have this problem or know anyone who does, and if so, how do you cope? What do you do? Do you have any advice for me? I try really hard to pace myself, but I'm finding it more and more difficult to slow my life down to accommodate my physical limitations. I'd really appreciate any input you could give me. If you even just want to vent, like me, I'm okay with that, too, LOL! -------------------- "It is our choices, Harry, that show what we truly are, far more than our abilities."
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